Flirting with Cancer – Part III

This was the little blob that started it all.

If you’ve started the journey on this blog – you might want to start at the beginning – otherwise it might not make sense.

By now my nervous levels were amped and darting all over the place. Was in full  corny joke mode and started chatting to my ward neighbours. Did not get to torture everybody for too long because another dude pitched up.

Show time.

Said good-bye to Chris and watched nervously as we tootled off into the lift and ascended into a part of the hospital I’d never seen before.

Pre-op. It was chilly as hell in there. A nice dude came and tucked a warm blankie-type thing around me. Stopped me shivvering – not sure if it was from the cold or with fear.

Several other people popped up waving forms around, checking my signature, was this mine? Was I sane and of sound mind… huh? Was I ever? Asking questions about nail polish and false teeth and when I last ate. Was I wearing the sexy undies? They gave me another pair of bloomers (okay not really but looked a lot like them) to put on my head.

The anaesthetist was running late and had not pitched up yet. 13h00 came and went. There was a giant-sized clock on the wall so I could see each minute ticking away. At some stage I pulled the bloomers down over my nose and shut the shitty world out.

I so badly wanted to get this whole freaking thing over with.

Eventually the dude pitched up, apologized for being late and the show got on the road. Apparently they like to double check that you are not talking shite and have not lied to the nursing staff. Really? I mean if you do something stupid like eat – it’s your life on the line. Who does that?

A beefy orderly wheeled me into the upstairs bowels of the operating area. Chilly as hell became even chillier.  We arrived at the venue. I had to scoot onto an icy slab and feel that I was in the middle – I guess they did not want me rolling around and falling off mid-op now – did they?

There were three bright lights above and it was fucking scary.

My doctor loomed into view. I’d already had a jab of something to make me drowsy and the dude had said sometimes people got truthful. Not me. I just started bitching about how his useless receptionist had booked me for a boob job…

Next thing I knew a nurse was tapping me telling me to wake up.

OHMYGODITWASSORE!!

Everything throbbed and burned and hurt like shit. Tilted my head to check that I still had my whole arm and hand. (Yes really – I had been very worried that they might chop it off in my sleep – stupid hey? Chris laughed like a drain when I told him.)

She asked if I was in pain. Fuck yeah. Took a million years for her to scome back. She rolled me over and jabbed me in the bum. That was sore too.

Lay there looking at the same big clock and realised I’d just lost more than an hour and a half of my life, as well as bits and bobs of body.

Eventually they wheeled me back to the ward. When my eyes lit on my lovely husband they filled with tears and leaked down my face.

My mouth felt like a thousand camels had trekked through it – was finally allowed a sip of water – 17 hours later.

Every little movement hurt like hell. Chris sat there and held my good hand – beaming love and support into my bod.  Feeding me with sips of water every so often – it’s a shite feeling when your teeth stick together!

Eventually they brought me supper – at some ungodly early hour of the afternoon. I took one look and decided perhaps not but slurped down some  shitty hospital coffee though that tasted fabulous.  We waited eagerly for the doctor to appear and give me the all clear to go home.

He arrived, greeting me with “How are you. Sore? I supposed that’s a silly question!” I replied – Fucking silly question! Can I go home now – with some industrial strength pain killers and a sleeping tablet please??

But noooo…. he thought it would be a much better idea for me to stay the night in hospital and my ridiculous husband agreed with him. Better pain control and the nurses could monitor stuff.

Did you ever!

Did not have the strength to argue. Besides I was attached to those voluminous blue knickers – was not ready to hand them over yet. Okay – I lie – was too sore to even contemplate putting clothes on and walking any distance. So I wimped and agreed to stay the night.

Chris went home, promising to bring me pizza (which I had bizarrely been lusting after) for supper later.

I dozed. The pain was quite interesting – and I have a very high threshold for pain. There was a feisty old lady in the corner bed – who was a survivor from the camps in the Second World War. She kept telling the nurses interesting stories and the other two ladies in the ward and I eavesdropped unashamedly.

Chris Whatsapped  later and said he was on his way back to the hospital. I texted furiously back and nixed the pizza- a ham and cheese homemade sandwich would be just lovely. True, I’d been lying there in bed, drooling for pizza, but could not for the life of me figure out how I was going to actually sit up and eat it without dripping greasy stuff all over the bed – besides – both arms were sort of incapacitated. One with a drip and the other with a chopped out forearm section and goodness only knows what was going on under my arm. I had yet to see. There was a drain too with an interesting looking concertina type thing attached to some tubing… attached to me.

In fact – I had no arms for the blood pressure thingy – they had to use my leg.

It should go on record – that was THE most delicious sarmie I have ever eaten.

I finally convinced Chris to go home and sleep. He’d had a horrendous day just sitting around worrying about his pain-in-the-ass wife. He was beyond exhausted.

Got doled out two pain killers and a half a sleeping pill around 22h00. Thought yay me – for once in my life I will sleep. Not so. Was awake again at 01h30. Mind you – it’s not very peaceful in hospital. They are always waking you up to poke and prod you and stick things in your ear.

Next morning finally arrived –  woofed down the breakfast that the other two ladies looked disparagingly at. It was totally delicious. Chris pitched up bright an early – after all the doctor had said that he’d release me when he did his early morning rounds.  Early my backside! He took his own sweet time.

Everything was still sore but bearable. The drain was removed, the hole covered up and I saw that there was an enormous track that had been cobbled up under my arm. I later found out – when the doctor removed the stitches, that they had removed the entire lymph node under my arm. That part of the operation was very much bigger than the excising of the melanoma bit.

Later that night, when I stripped and got into bed, I found this was still attached to my back. We had a good laugh and Chris peeled it off. The wound under my arm was incredibly uncomfortable. The next morning when I showered, I was horrified to discover that the whole of the back of my shoulder and arm was completely numb. Except for the bit  above my elbow where it felt like it had pins and needles – sort of.

Apparently this is normal and it takes 3 to 4 months to get the feeling back. A bit of warning would have been nice.

Waiting for the results was just horrible. Everybody was telling me to be positive – but it had not occurred to me that the mole could have been a melanoma in the first place – and I’d been incredibly complacent. So I was not going to make that same mistake. Was cautiously optimistic.

We’d been told he’d give me a call on the Wednesday or Thursday. Life went on and I started driving on Tuesday (the op was the Friday before). Mom needed pills. I do confess, that when I had to go back to the shops on Wednesday because Clicks had messed up mom’s pills and she’d not checked – I had a meltdown. Stomped into my GP’s rooms and demanded to know what had happened to the histology report – who had screwed up and then promptly laid my head on the desk and wept. Then fled . (Called Chris and told him that there should be a support group for people who had to live with their 84 year old mothers, damn near broke my cell phone with all the snot and tears.) It’s not always easy. For any of us. But mom not having her license makes it a little harder. Had to take her a PS- I’m sorry choccy the week after and apologize. At least the waiting room had been empty because I had let rip with some choice words.

On Thursday – 6 days after the op, I emailed Miss Thang at “My doctors” office, reminding her to remind him that he was supposed to call me with the results. Par for the course there was no nice little reply back. She has absolutely no people skills at all.

The doctor called a few hours later and gave me the all clear.

Chris brought home champers that night and we all celebrated. Well not quite. It had been very stressful on everybody – tippy-toeing around a person who was branded with the dreaded C. Once I got the all clear, Emma fell to pieces and had a hissy fit. I could understand it.

On the 4th of June (3 days late because the dude went on holiday – check out the lovely professional emails). I had the stitches out of both places. My arm looks pretty good – specially if you look at it from above. From the side it looks a bit like a lop-sided camel.

8cm of cut!

The place under my arm is not half as neat. Think whoever sewed that up was practicing to be an upholsterer. In fact, I’m sure they used the opportunity to check out the insides of my elbow with the gamma camera whilst they were grovelling under my arm. Or that’s what it feels like, anyway.

The entire month of May 2018 was filled with stitches, worry, panic, more worry, jubilation, pissed-offness and being incredibly thankful that that I got the all clear – well – put it this way – that particular node was clear.

 

 

 

Flirting with cancer – Part II

If you missed the first bit of this dastardly cancer journey – start here.

The 18th May finally arrived. D day.  I’d set about 6 alarms because I’d been sleeping unbelievably badly and sometimes fell dead asleep around 5ish. We had to be at the hospital at 07h30.

Not being allowed anything to eat or drink meant no coffee. But the furries still needed to be fed.

It was one of those crisp wintery mornings where everything smells of a brand new day – with a hint of exhaust fumes.

There were only a couple of people at reception and so the booking-in process was a doddle… except for the fact that I noticed – after they had already printed 60 stickers – that the Medical Aid member code was for Chris and not myself. We groaned – perfectly sure that this was going to cause plenty of hassles later on.

Turns out all my doctor’s patients get put in the gynaecology slash urology ward. We were given directions how to get there.

Fuckydoodle! I thought to myself as I saw what number bed I had been assigned to – really – number 13?  You’ve got to be kidding. I want another bed.

But no – 13 it was. Seemed pathetic to make a fuss and ask for the bed by the window. (Those are the best spots – by the way… if you ever do have a choice.)

The nice sister pitched up with a gajillion forms and a receptacle covered with a crackling baggie. She pointed to the bathroom – samples were needed. It’s hard widdling into a bottle when your hands are shaking.  I got weighed and measured. The nurse oohed and aahed over my lovely weight.

Chris sat next to my bed feeling very much like the odd man out in the ladies ward. I offered him the choice of breakfast at Wiesenhof but he declined.  It was warm in the ward after the brisk chill of the morning outside and I shed layers of clothing including my boots and made myself comfy sitting cross-legged on the bed. It was going to be a freaking long time to 13h00 when the op was scheduled.

Two seconds later a dude pitched up with a wheelchair. I was needed in nuclear meds.  Somehow I had fondly imagined that another nice nurse was going to pitch up with a needled full of toxic stuff that would be injected into my veins… not so.

No really… I protested – I can walk. It was, however, not an option. Hopped back into my boots and into the chair. We were half way down the corridor when I asked if I could take my book. He sighed – yes – I could have my book. So I leapt out of the chair before he could object and started running back… a few steps away I stopped and said – well could I have my phone too – else how was I going to be in contact with Chris. Double sigh – clearly he realised this was going to be a high maintenance patient.

Chris saved the day and dumped my entire handbag on my lap and the journey began again.

Down the passage (back the way we’d just come) and into double doors marked “nuclear medicine”.  My trustworthy driver parked me in an empty section and departed. I gave my name to the receptionist and pointed out that the number on the sticker was wrong. She rectified it – for their section anyway.

I sat, heart thumping. Not knowing what to expect.

I should mention here – the answers that I had gotten from “my doctor” were sketchy and not really satisfactory – but I’d decided it wasn’t important – I could surely find all the information I needed on the internet. Turned out this was not the case. I was frantically messaging my friends from iThemba LABS days – asking how it all worked – and trying to figure out what the procedure exactly entailed.  How did removing or biopsying a sentinel node work. What did it involve?  There was loads of info on certain things and absolutely nothing on others. The best I could come up with was this really scary video the night before the op. Then I really panicked. Have no clue if I was just  a crappy Googler or if people don’t tag with the correct keywords – but I was unprepared to say the least.

A nice lady came out and introduced herself. She asked me either when, or where, I’d had the mammogram.

THE MAMMOGRAM???

My chin dropped onto my knees. Gobsmacked! Really? I was supposed to have had a mammogram for this op? WTF? Nobody told me.

Never – was my reply.

She crossed her arms – a bit shocked.

Well… how do you know you’ve got breast cancer then?

The receptionist nodded. Yes – you’ve been booked in for breast cancer nuclear meds.

I exploded – that bloody woman had fucked up again. Seriously! (According to the receptionist it was not the first time either. Apparently she was new.) I didn’t care what she was – I was really miffed.

The nice lady had to go off and recalibrate her machine or whatever it is they do – with the correct dosage of nuclear meds. I sat there fuming. Imagine if they had not had the right meds available and the whole thing had to be postponed again because of one person’s stupidity.

A few minutes later I was ushered into the inner sanctum. A snazzy white gamma ray camera was the focal point.

Oh. Right. Fabulous. Nowhere in any of my googling had this little baby shown up. (I snitched this pic off the internet – leave a message below if you recognise it and want some credit – I’ll happily give it.)

She explained that she was going to inject either side of the now-non-existent mole. The meds would travel up my arm and land up in the sentinel node – or something like that.  I dutifully handed over my arm.

She foofled and fiddled and rearranged things for about 10 or 15 minutes. Then positioned me under the gamma camera. The box like plate with the camera came down close to my face – actually it touched my nose at one stage but I objected and it went back up a few millimeters.  She was really sweet and kept checking that I was comfortable. I had a fluffy thick blanket covering most of me – thought it was a bit over the top in the beginning but turned out it was necessary in the end.

I’m going to leave you here for 30 minutes – she said.

OMG! Really – 30 minutes – lying still. What happens if my nose itches or I want to sneeze. Sneakily slid my eyes over to the monitor to see if I could interpret anything on the screen. Nada. Wickedly wiggled my fingers on the injected arm to see if it made a difference. There was a little star burst on the screen a few seconds later. Tried it out again – but then there was nothing – must have been a coincidence. Got eye ache after a while and retreated into my head. This whole episode was going to be blogged. I started then.

The 30 minutes passed in… well… 30 long minutes. Time does not fly when you are not having fun. It drags.  My jersey sleeve was all wrinkled and was pressing on my elbow bone – it had started to hurt like hell. Was a relief to be able to move again.

The relief was short lived.

She wiggled me around some more and horror of horrors – zooted me further under the camera. My whole head was now under the plate-like box thing. It was even closer to my head. Thought about panicking… then gave myself a strict talking to. How old are you Virginia? 12? Buck the fuck up!

Closed my eyes. It made the claustrophobia worse. So opened them again. The floaters in my eyes drifted off to the side of the plate – out of sight. Hey! Come back – I thought. Play with me. But no – they disappeared. Meanies.

Blinked a few times to see if I could conjure up any more. Nothing. Ho hum… what to do?  I am not a person who likes just lying around doing nothing.

Picked a spot on the plate and disappeared into my head again. The blog blanked – so I retreated to my happy space – a Chris De Berg Concert that my lovely husband had treated us to earlier this year – the one where he touched my hair (no really – he did – but you’d have to read the blog to find out how it happened).  Replayed every single song that I could remember in my head – bitching to myself when I could not remember the words.

That bout thankfully did not last 30 minutes. I was told to go and sit in the reception for 40 minutes and rub my arm a lot – so that the nuclear meds could reach the node under my arm pit. (Don’t think my circulation was that fabulous at that stage.)

I scuttled off on shaking legs and texted my man. He’d come and find me as soon as he’d finished his breakfast.

Breakfast! Jeez – was not hungry but would have killed for coffee.

In the process of the nuclear meds imaging, I had gleaned another little gem of information. The gamma probe that my doctor was going to use to grovel in my lymph node was broken (that could also have been why the op was postponed – but why the hell didn’t the dilly woman tell me that) and so the rep was coming out with a new probe and was going to demonstrate to my doctor how to use it… ON ME!

Holy shite! Was starting to feel very nervous about this whole operation. Chris and I agreed we might need a discount if this was going to be a learning operation. Literally.

The second bout in nuclear meds was not too bad – or too long – thankfully. She drew under my arm and stuck plasters on the blobs – apparently this would enable my doctor to find the node – somewhere in that region. She also told me that she would be there – during the operation to provide information or help interpret the scans… or something. I was relieved – at least they would not be lopping off my boob or anything.

Chris and I grabbed the blanket off the wheelchair and opted to walk back to bed number 13. By now it was around 11h30.

I’d been handed the pictures. In a sealed envelope – with my doctor’s name on it.

Back in the ward I was given the hospital garb to don. That sexy gown with the open back and the ever sexier knickers. Went off to the loo and stripped.

comparisons…

Bit crazy really because the ward’s warm but the toilet’s freezing.

Put the gown on – wrapped the ties completely around me and considered tying them under my boobs. Refrained.  Put the knickers on.  Clearly the wrong way round. Took them off again and put them on the other way.  Took them off yet again and gave them a shake. Maybe I’d used a leg hole for the waist… hmmmm…  fell around giggling in the loo – WTF?  Could have fitted three of me in that one pair of bloomers.

Zooted back to No. 13 and leapt in. More forms needed to be filled in.

After the nurse had departed, Chris picked up the envelope and held it up to the light. We could not see much. But my lovely  husband is not a genius for nothing – he hauled out his cell phone, flipped on the light and positioned it behind the envelope. We could read everything. Of course, it didn’t make much sense to us, but at least we stopped feeling excluded.

By now my nervous level was sky-high and darting all over the place. Was full into corny joke mode and started chatting to my ward neighbours. Poor Chris was doing the cringy thing again.  Did not get to torture everybody for too long because another dude pitched up.

Show time.

Read how it all works out

Going Nuts!

Jack, Gemma and I swished through the carpet of fallen leaves this morning, on our way to the bottom of the garden.

Our destination…  the pecan nut tree.

Off to gather nuts.

Round about this time last year we started looking at houses. The very first house we went to see had a gorgeous garden. Having lived in a complex for more than nine years, after a cursory look inside my lovely husband and I made a bee line for the leafy green area outside.

Crunch crunch went something underfoot. I raised an eyebrow at the estate agent.

Pecan nuts, she replied.

I looked at my man… we must have this house.  And so we bought a pecan nut tree!

Of course, by the time we moved in a few months later, most of the pecan nuts were finished – just the odd solitary one clinging to the bare branches above.

We watched and waited with baited breath. Slowly, but indeed surely, the bare branches turned to leafy green boughs. Teensy green bud-like things eventually appeared. These  too grew slowly, oh so very very slowly.

The first few nuts fell early in April. We pounced on them. However,  green nuts do not taste so fabulous. After a few weeks the quality of the nuts that dropped improved – they ripened to perfection. Fresh off-the-tree pecan nuts taste beyond divine.

The washing line is down by the pecan nut tree and I had this stupid little OCD thing going on in my head – every time I went down there – I needed to come back with a nut, or three, or maybe even four.

Slowly the coffee tins in the kitchen overflowed and bags of nuts were dispensed to people deemed worthy of sharing in our bounty.

This week, the end of May 2018, we had rain – twice – not really what you’d expect when it’s almost winter in Pretoria.

It rained nuts too. Literally. Not one, but two 500ml tubs were filled to overflowing on one single gathering.

This morning Jack, Gemma and I braved the elements and went down to the tree to do a nut inspection.  Gemma immediately snagged a pecan nut and weaseled her “worsie” way under the Wendy house to crunch her loot. (We inherited Gemma the sausage dog with the house. She’s fond of pecan nuts – although unlike her previous owners, we don’t feed her vegan food – so she’s not as hungry as she was last year.)

Jack and I were in mortal danger – the nuts were crashing down around us as we gathered. Jack, in his usual catly fashion, was leaping around trying to catch them as they bounced around on the ground.

We’ve had conversations before about being smacked on the head by a plummeting nut. In fact Luan (aka vetboy) offered to hurl one at me, which I not-so-politely declined. Am sure one would feel a bit like Chicken-Licken when the sky fell on his head.

Spot the nut?

Collecting nuts is a bit like spotting wildlife in the bush. They lie nicely nestled amongst the leaves – camouflaged. Often a bump underfoot indicates that you’re standing on one that’s been sneakily lurking in plain sight.

Isn’t that enough to crunch it – you ask?

No. It’s my test for the ones that feel suspiciously light (usually indicates they’re bad).  A healthy nut does not crunch under my weight on the soil.

Of course it’s compulsive and one’s eyes search further and further afield. This resulted in my getting a boot full of Gemma poop the other day – also camouflaged amongst the leaves.

This cold, wet morning I piled our muddy bounty onto the garden bench.

Really?

Jack jumped up and looked at me. Like really? You’re just going to leave them there? Alone? He started pawing at the nuts – sending them zooting around the wet planks, whizzing back down to earth!

One can always count on Jack to assist – no matter what the task.

And all the while we were supervised by our four resident hadedas at the other end of the garden.

Hadedas supervising.

A tad frozen, we returned inside to write this blog. Once again Jack pitched in. He jumped onto my desk, tracked muddy paw-prints all over the place (the mouse is still making nasty scrunchy noises as I move it). He then proceeded to note his comments on a piece of paper next to my laptop.

Jack’s contribution to the blog.

He washed himself, ordered pizza from Domino’s, then curled up and went to sleep in his usual spot… my “In tray”.

Every now and then the cracking sound of a pecan nut hitting the corrugated iron roof of the Wendy house has him extracting his head from his bushy tail and sleepily starting at me – wondering if he should go off and investigate or not.

 

Jack orders pizza.

It’s just the pecan nuts Jack, I tell him. Nothing to worry your furry little knickers about.

He tucks his head under his tail again and goes back to his twitchy slumber.